About Time Front Cover

 

ISBN 1 902702 10 7

A5 Paperback

 

RRP 5 / $ 10

 

Copies of this book may be obtained (+postage and packing at cost) from the author – steve.smith@uea.ac.uk or from The Huntington's Disease Association info@hda.org.uk

Huntington's Disease

– A Nursing Guide

Steve Smith

 

Steve Smith, BSc (Hons), PGCE, RGN, is a Lecturer in Nursing at the University of East Anglia, School of Nursing and Midwifery, Norfolk, England, UK.

 

'I want to tell you about things that went wrong as well as things that turned out well, because I don't think there are any absolute answers to many of the dilemmas, but there may be something to learn if we are open and honest about our experiences'.

 

'When did you last hear that word "rehabilitation" in connection with a degenerative disease? But that's just what rehab is, regaining independence. There's another name for it. Nursing! Nursing is about making it possible, not taking over'.

 

While primarily about Huntington's disease, this book will be useful to carers of people with a range of degenerative neurological conditions, including Parkinson's disease, Alzheimer's disease, Multiple Sclerosis, and Pick's disease.